Coloboma of the eye - bilateral
Exotropia (because the eye that once turned in is now slightly turning out. Normal)
Choroidal neovascular membrane - bilateral
When we were finally called back for consult we learned that the membrane in Cora's left eye (her strong eye) was indeed still leaking. Injecting the Avastin would theoretically stop that leak, and potentially restore some of Cora's vision, if any had been lost for that reason (side note: we don't know if this leaking has been taking place since birth, or since three months ago. There isn't any way to know ). We agreed, and he was finished with the procedure 15 minutes later. An hour in post op, and then another half hour in "the go home room", and we were on our way back to DeWitt.
May I just take a moment to say what incredibly magical places childrens hospitals are? My only other experience in one was when Ezra broke his femur, but were were just visiting for a second opinion, we weren't there for treatment or surgery. They had Cora wrapped around their finger at Mott Childrens Hospital. They dressed her little lamb in scrubs, cap and mask included. They let her "paint" the inside of her Anesthesia mask with her favorite flavored chapstick, They had all the TV and toys a kid could want, AND the first thing they gave her after surgery was a popsicle! Aside from the needle still being in her arm when she came-to, she was happy as a clam!
situation will end up needing a second injection, so only time will tell.
How does this relate to her vision?
Good question. No idea. Her vision is another issue entirely. I'd love to say that its unrelated, but in truth we don't know. She doesn't even know. Because she has nothing to compare against except her previous vision, she is her own baseline. I mean, sure, we can run her through standard vision tests, but those only tell how far away you can see things. That is only a very small fraction of her situation. So, we watch her, wait, and do lots of learning in the meantime. We never cease to be amazed by what she CAN see, and the things she can't see don't surprise us all that much. She's also developing a keen knack for "selective vision" which is uniquely similar to "selective hearing" if you catch my drift.
So there you go. I haven't blogged in 2.5 years and all you're going to get today is an update on my dear sweet NEARLY 5 year old daughter. Alas, more later